My Marfan syndrome story
I don't remember the moment I was diagnosed with Marfan syndrome. I was less than one-year-old when it happened, but I do know the story.
My mother sought medical advice when she noticed the irises in my eyes wiggled like jelly. Doctors discovered that I had dislocated lenses, which were also subluxed.
Since lens dislocation is a hallmark of Marfan syndrome, after conducting a slit-lamp exam the ophthalmologist immediately suggested the diagnosis.
About 60% of people with Marfan have lens dislocation, but dislocation can happen at