Cystic fibrosis drug wins PBS approval

Ivacaftor, which costs up to $380k, will be listed for babies aged 12-24 months

The price of an expensive drug used to treat cystic fibrosis will be dramatically reduced for the parents of babies suffering the disease.

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Federal Minister for Health Greg Hunt announced on Sunday that ivacaftor, which costs up to $380,000, will be listed on the PBS for babies aged 12-24 months.

“Families will be able to access this medicine and will pay up to $40.30 per script, or $6.50 with a concession card,” Mr Hunt told the Sunday Tasmanian.

Early intervention with the drug raises the life expectancy of patients with cystic

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