Patient registry for haemochromatosis launches

Australia is the first country in the world to set up a patient database for the genetic condition which will be used for research purposes

A world-first patient registry for people with haemochromatosis will be launched in Australia. 

Dr Dan Johnstone.

The Haemochromatosis National Patient Registry (HNPR) will be a centralised cloud-based database for research into the role of iron in chronic health conditions including liver disease, arthritis, diabetes and cardiac conditions. 

It will also be vital for future research

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